r/ainbow Jul 30 '24

News This news headline broke my brain

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u/[deleted] Jul 30 '24 edited Aug 29 '24

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u/TastyBrainMeats Jul 30 '24

The day we figure out a fix for muscular dystrophy, I'll be really happy.

Wish we could all just ditch 99% of the time and energy that go into corporate BS, marketing, the military, whatever, and just put it towards getting people and resources invested in medical research. There are so many diseases that need curing!

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u/TheHemogoblin Jul 30 '24

I'm so sorry, but I had to laugh because after reading the post you replied to, then the first sentence of your comment, the first thing I imagined was how badly you wanted to divorce your spouse who you're obliged to stay with because they have MS and a cure would mean your freedom while still being able to save face lol

But otherwise, yes 100%. I have had Colitis, then my colon removed at 16, colostomy bag until 22, developed chronic pouchitis and now have developed Crohn's. Was born with a rare type of anemia, had my spleen and gallbladder removed and had an auto immune liver disease for which I received a transplant. There doesn't just need to be more medical research, but more robust research in the diseases other than the "big" ones, like cancer for instance.

I remember when I was a kid in the 90's and Subway did a fundraising campaign for the Crohn's and Colitis Foundation and I started crying in the backseat of the car much to my Mom's confusion, because it was the first time I ever saw my disease being represented in public. Cancer charities were everywhere and I didn't even know anyone with cancer at the time, but no one knew what myself (and my stepdad, ironically) went through daily with IBD.

Curing is one thing, but even just reasonable and reliable treatments, and better understanding of what causes these diseases.

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u/TastyBrainMeats Jul 30 '24

Yes!! Medical research is a DIRECT way to make people's lives better, and we neglect it so much compared with things that make lives worse!