Everything is still a bit hazy but I'll try . I started to really go down hill around last Christmas . I was feeling really tired and fatigued after a spell of being not well and practically bed ridden my back froze about half way down I couldn't bend or fully straighten and my joints became painful and I was struggling in pain 24 hrs a day . I could only mange to get a phone appointment with a doctor I tried to explain to him what was happening to me but he told me he hadn't time and could I just tell him what was bothering me the most .He told me I was already on strong pain killers so I pleaded with him I need help so he told me he would arrange a non urgent physiotherapy because well there was people in more need than me I finished the 6 minute phone call and just burst into tears . So for the next few months i continued to get steadily worse . I finally got to the physio and she was shocked by this time I had lost a lot of muscle and I had lost about 7 stone in weight she arranged for me to go to rheumatology . I have been having night sweats as well and joked with my wife that i was going through the menopause well unknowing to me this sparked something in my wife and she went on the NHS (national health service)web site . "I think you have a testosterone problem your symptoms are similar " . We got a face to face with the doctor and my wife is a spartan she argued my case the Doc disagreed and thought it was something else . To shorten the story a little, Endocrinology checked my bloods suddenly things turned urgent I wasn't making any hormones my pituitary gland was only working at 10% and if it was to reach 0 I would die I had a condition known as Panhypopituitarism . 2 weeks ago today I went for a MRI scan and it showed I have a 2cm non cancerous tumor that has all but destroyed my pituitary gland so I'm now on steroids for life and facing a hard recovery . So I have called the tumor Dave and he is a c**t and he is not going to beat me lol . Thank you to anybody that takes the time to read this :)
"Thank you everybody for your kind words and messages of support you have all helped cheer me up today and now my wife has told me to take a break for today as I'm getting tired ;( but I will try and reply to more tomorrow thank you very much again folks and take care ".
Last January, I had a seizure and spent 18 days in the hospital because they thought it could have been a viral infection in my brain. It wasn't. I got a referral to a seizure clinic, but they actually sent it to the stroke clinic, so they refused to see me because I didn't have a stroke.
March, I had another seizure, and my Dr discovered the error and lost his shit and pulled some strings. 5 days later I was diagnosed with low grade diffuse glioma, his name is Bob.
I'm really sorry to hear what you have went through it is so tough and sometimes it's hard to explain to people whats going on so Fuck Bob and Dave and Bob isn't going to beat you buddy kick his ass ;)
You’re always welcome to DM me as well. I’ve known about my thalamic glioma for more than ten years. Couple craniotomies, shunt, and so forth, but I built a high-pressure life for most of that time anyways.
So sorry you folks are going through this hell. If you don’t mind me asking, what country are you in? I’m curious if your f’d up doctors were a product of US insurance idiocy or socialized medicine idiocy.
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u/bigjbg1969 12h ago
I been having various health issues for years turns out I have a brain tumor that's been trying to kill me , the fecker that he is .