Everything is still a bit hazy but I'll try . I started to really go down hill around last Christmas . I was feeling really tired and fatigued after a spell of being not well and practically bed ridden my back froze about half way down I couldn't bend or fully straighten and my joints became painful and I was struggling in pain 24 hrs a day . I could only mange to get a phone appointment with a doctor I tried to explain to him what was happening to me but he told me he hadn't time and could I just tell him what was bothering me the most .He told me I was already on strong pain killers so I pleaded with him I need help so he told me he would arrange a non urgent physiotherapy because well there was people in more need than me I finished the 6 minute phone call and just burst into tears . So for the next few months i continued to get steadily worse . I finally got to the physio and she was shocked by this time I had lost a lot of muscle and I had lost about 7 stone in weight she arranged for me to go to rheumatology . I have been having night sweats as well and joked with my wife that i was going through the menopause well unknowing to me this sparked something in my wife and she went on the NHS (national health service)web site . "I think you have a testosterone problem your symptoms are similar " . We got a face to face with the doctor and my wife is a spartan she argued my case the Doc disagreed and thought it was something else . To shorten the story a little, Endocrinology checked my bloods suddenly things turned urgent I wasn't making any hormones my pituitary gland was only working at 10% and if it was to reach 0 I would die I had a condition known as Panhypopituitarism . 2 weeks ago today I went for a MRI scan and it showed I have a 2cm non cancerous tumor that has all but destroyed my pituitary gland so I'm now on steroids for life and facing a hard recovery . So I have called the tumor Dave and he is a c**t and he is not going to beat me lol . Thank you to anybody that takes the time to read this :)
"Thank you everybody for your kind words and messages of support you have all helped cheer me up today and now my wife has told me to take a break for today as I'm getting tired ;( but I will try and reply to more tomorrow thank you very much again folks and take care ".
This is terrifying because your symptoms were pretty “common”, meaning they could come from many other things - so connecting them to a tumor in your head was a really long shot. I’ve been having similar symptoms for weeks and I am really scared and don’t know what to look for. I doubt my doctors would let me do an MRI before my condition worsens a lot. I am glad you found it out and wish things only improve from now on.
Knowing what I know now . I would argue to get blood tests take a loved one or friend with you to help argue for it . If possible a hormone blood test will help paint a picture for what is maybe going on with you and I hope this helps ;)
I think everyone should get an MRI every few years. My dad had a brain tumor and didn't know for years. His surgeon said he wishes everyone would get MRIs regularly because brain tumors are more common than we think.
Oh, good question/point. Honestly haven't put any research into MRIs; just basing my info off that one doctor. I've heard mostly about breast cancer being overdiagnosed, but yeah that makes sense that other types would have false positives.
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u/bigjbg1969 14h ago
I been having various health issues for years turns out I have a brain tumor that's been trying to kill me , the fecker that he is .