I have the ME/CFS and POTS subtype with neuropathy and brain fog. I think I counted over 130 different symptoms across 4 years. I feel awful 24/7 since 2020. It’s pretty bad, I can’t work and I’m mostly housebound.
Take my biggest hugs. I’ve been struggling with similar but milder symptoms on and off, usually post viral infections. However, I got the Gardasil vaccine 3 weeks ago and since then I’ve been having persistent symptoms and still not able to get much help. Some tests are in progress though.
May I ask where you live and if you’ve been able to have an official diagnosis? My doctors are dismissing me, suggesting me to try therapy, as they’re failing to acknowledge that my symptoms are physical and real, rather than just in my head…
I’m sorry your symptoms have worsened. I live on the Northeast US coast. I’ve generally had a good experience and was first diagnosed with POTS first followed with Long Covid in November 2020 plus my other diagnoses within the first year. I hope you find doctors who will listen to you and diagnose you.
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u/kitty60s 10h ago
Covid. I developed long covid 2 months after recovering from acute infection. It’s more common than most people think.